Endometriosis Awareness Month: Raising the Voices of Those Affected

Dr. Connie Alford

Authored and medically reviewed by Dr. Connie Alford

Dr. Connie Alford is a fertility specialist and reproductive endocrinologist who sees patients in Naples.

Posted on March 10, 2025

March is Endometriosis Awareness Month, a time to shine a spotlight on a condition that affects millions of people worldwide yet is often misunderstood or overlooked. Endometriosis is a chronic and painful disease that can have a significant impact on the lives of those it affects. In this blog, we’ll explore what endometriosis is, its common symptoms, and why it’s so important to bring awareness to this often under-recognized condition. 

 

What Is Endometriosis? 

Endometriosis is a medical condition in which tissue similar to the lining of the uterus, called the endometrium, begins to grow outside the uterus. This tissue can develop on the ovaries, fallopian tubes, the outer surface of the uterus, and even on other organs within the pelvis. Each month, during the menstrual cycle, this tissue acts as if it is part of the uterus lining: it thickens, breaks down, and sheds. However, since this tissue is outside the uterus, it has nowhere to go, leading to inflammation, pain, and in some cases, scarring and adhesions. 

The causes of endometriosis are not fully understood, but several factors are believed to play a role, including genetics, hormonal imbalances, and immune system dysfunction. While the exact cause remains uncertain, one thing is clear: endometriosis can have a profound impact on a person’s quality of life. 

 

Common Symptoms of Endometriosis 

Endometriosis manifests differently in each person, but there are several common symptoms that are often associated with the condition. These symptoms can range from mild to severe and may worsen over time: 

  • Pelvic Pain: This is the most common symptom. It often includes pain during or after menstruation but can also occur at any point during the menstrual cycle. 

  • Heavy Periods: People with endometriosis often experience excessively heavy menstrual bleeding or bleeding between periods. 

  • Pain During Intercourse: Deep pelvic pain during or after sex is another hallmark symptom of endometriosis. 

  • Painful Bowel Movements or Urination: Painful bowel movements or urination, especially during menstruation, is common, as endometrial tissue can grow on the intestines or bladder. 

  • Infertility: Endometriosis is one of the leading causes of infertility. 

  • Fatigue: Constant tiredness or exhaustion, even after a full night’s sleep, is another symptom that many with endometriosis report. 

It’s important to note that the severity of symptoms does not always correlate with the extent of the disease. Some individuals with minimal endometriosis may experience severe pain, while others with more widespread disease may have few symptoms. 

 

Why It's Important to Raise Awareness 

Raising awareness about endometriosis is crucial for several reasons. First and foremost, endometriosis is often underdiagnosed or misdiagnosed. It often takes years for someone to receive a correct diagnosis after the onset of symptoms. This delay is largely due to the fact that many of the symptoms of endometriosis are commonly mistaken for other conditions like irritable bowel syndrome (IBS), pelvic inflammatory disease (PID), or even normal period discomfort. 

By raising awareness, we can ensure that more people understand the symptoms of endometriosis and seek medical attention earlier. Early diagnosis and treatment are key to managing the condition and improving quality of life for those affected. 

 

Conclusion 

Endometriosis Awareness Month provides an opportunity to bring attention to a condition that affects an estimated 1 in 10 women of reproductive age. By educating ourselves and others about what endometriosis is, its symptoms, and its impact on those affected, we can help reduce the stigma surrounding the disease and push for more support and research.  

If you or someone you know is struggling with endometriosis, it’s important to remember that you are not alone. There is a community of people advocating for better awareness, support, and healthcare. If you have symptoms of endometriosis and have been unable to conceive for a year, or six months if you are over 35, it may be time to seek the advice of a fertility specialist. Our board-certified reproductive endocrinologists will work with you to create a personalized treatment plan that works for you. Take the first step and schedule an initial consultation. 

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